stage 1

Clinical Review of the Impacts of Hepatitis C:    Short Life Working Group Report for the Scottish Government:

 Informing Decision Making on Awards for People, without Advanced HCV Disease, who were Infected by Hepatitis C through NHS Blood Transfusion/Treatment with Blood Products, and for their Widows, Widowers or Civil Partners

May 2018

 

In mid-2017, the Scottish Government asked Professor David Goldberg, Health Protection Scotland, to establish and preside over an expert group to assess the health and wellbeing of individuals, chronically infected with hepatitis C virus (previously often known as Skipton “Stage One”) infection in Scotland through NHS blood transfusion/treatment with blood products, who had not progressed to advanced hepatitis C (previously often known as Skipton Fund “Stage Two”).

Patient representatives of  individuals infected through blood transfusion/treatment with blood products have argued that there is inequity regarding the Scottish Government’s financial support scheme’s annual payments because the current arrangements do not take into account the broader impacts of hepatitis C on health and wellbeing among individuals with chronic hepatitis C – impacts which can be harder to quantify in clinical terms. It is in this context that a clinical review of the impacts of hepatitis C on those affected by infected NHS blood has been established.

The report was published by Scottish Government on 11 July 2018.

As of that date the Scottish Health Secretary has yet to announce the Scottish Government’s repsonse to the report’s conclusions and formal recommendations. That response will also include a financial translation of the medical and other evidence detailed in the report and establish annual payments for stage1/chronically infected people or their widows/widowers.

11th July 2018

Clinical Review Group Report of the impacts of Hepatitis C infection on chronically infected people

Clinical Review of the Impacts of Hepatitis C:    Short Life Working Group Report for the Scottish Government:  Informing Decision Making on Awards for People, without Advanced […]
25th March 2018

‘Stage 1’ Widows

SIBF and Haemophilia Scotland issued a joint letter to Scottish Health Secretary, Shona Robison, on 17th January highlighting the inequity of treatment of ‘stage 1’ widows. […]
21st November 2017

“Can we live out the rest of our lives with dignity?”

“Hello I’m Sean (not real name), I’m 61 years of age, I live near Glasgow and I’m a member of the Scottish Infected Blood Forum. I’ll […]
2nd August 2017

Comparison of HCV annual payments

The Skipton fund announced in April 2017 an increase to the HCV annual payments for stage 2 categorised people, at the same time the Scottish Government […]
27th April 2016

Penrose – Transfusions – Estimates of Numbers Infected with HCV 1970 to 1991

The Penrose Inquiry generated a large quantity of data. Here we extract and illustrate the estimated numbers of people infected with Hepatitis C from 1970 to […]
25th April 2016

Scottish applications to Skipton Fund to 2011

    The Penrose Inquiry, roundly branded a ‘whitewash’, did nonetheless yield important information about the contaminated blood disaster as it affected Scotland and Scottish patient […]