Following on from the joint member meeting on Saturday 21st April, SIBF representatives along with those from Haemophilia Scotland and independent campaigners met with Sir Brian Langstaff, the UK wide inquiry Chairperson, along with two of his Inquiry team members, in Edinburgh.
We put our joint members’ questions and concerns to Sir Brian and his team and we had a very detailed and prolonged dialogue lasting longer than had been scheduled.
As a result of this SIBF and Haemophilia Scotland staff and Trustees drafted our joint response to the Inquiry terms of reference consultation. This was submitted yesterday before the consultation deadline.
A copy can be downloaded here.
The response included all of the points highlighted by our memberships that attended the meeting on Saturday the 21st, together with the points raised to us by those who could not attend that meeting. We do not claim that the consultation response represents the views of every affected person in Scotland but we have endeavoured to accurately reflect the issues that have been raised with us and highlight some of the lessons we believe should be learnt from our collective experience of the Penrose Inquiry.
We would like to thank all members who participated in the detailed discussions for their time and fortitude. Going over past events can sometimes be harrowing and draining and we commend all who showed the determination to continue on this path with us.
We would also like to thank Sir Brian Langstaff and those members of his Inquiry team who met with us, Brian Stanton (Solicitor to the Inquiry) and Catherine Nalty (Deputy Secretary to the Inquiry).