At the recent Joint Member’s meeting held on the 20th, one member, a stage 1 widow, read out a brief statement, which succinctly illustrates her feelings on the stage 1/stage 2 distinction in relation to the death of her husband:
“Stage 1 Deprivation of Allowance
I consider this to be utterly unethical and totally without reason.
When someone is given a treatment/injection which is almost certainly going to result in premature death, how can someone define when/what stage he/she is going to die?
Stage 1 / Stage 2 what is the difference?
DEATH IS DEATH.
It leaves devastation, desolation and desperation even under normal circumstances.
To be consigned to “stages” is to add to an already cruel and unjustifiable situation.
In addition to the above brief description of consequences of losing someone in this way, to classify death as at Stage 1 or Stage 2 is not just discriminatory, the rationalization defies description!
It is a pure example of “man’s inhumanity to man” inflicting psychological torture.
Anyone whose loved one’s death is classified in this way suffers not only the cruellest loss but also an indescribable financial insecurity.
We must have these defined stages removed forthwith.
I find it astounding that any decision maker can find this a humane or acceptable situation completely beyond understanding.
To inflict psychological torture and financial deprivation on anyone is unacceptable!
Adding insult to injury on an already very traumatized and saddened person is incomprehensible for ANY reason.”
Note: any comments on the posts do not necessarily represent the views of the trustees and staff of the Scottish Infected Blood Forum, but are the heartfelt sentiments built up over many years of suffering and pain of some members.